Walking into the Emergency Department at the Perth Children’s Hospital with their sick two-year-old daughter Amelia, Brianna and Russell felt…
At only 6 weeks of age, Alexey was rushed to emergency, after he experienced a stroke, with large amounts of bleeding to the brain.
“If not for PMH, Alexey would not have survived,” states Alexey’s parents.
His initial stroke destroyed almost half of his brain, leaving him with Cerebral Palsy, along with vision loss and seizures. After transfers from the infant ward to the Intensive Care Unit, an emergency craniotomy and full body cooling, doctors discovered a large intra-abdominal tumour.
Thankfully, his tumour was successfully removed. In 2012, Alexey underwent a hemispherectomy, a life changing brain surgery, where the surgeons successfully removed most of his damaged right cerebral hemisphere.
Since then, Alexey’s seizures are well controlled and he attends the rehabilitation program at PMH, using the Foundation funded robotic arm to strengthen his arm. “I want my left arm to learn to grab things,” he says, determinedly.
“Alexey has taught us immense strength, resilience, amazing attitude of never giving up and trying his best,” says Anna, Alexey’s mum.
Anna has become a full time carer for Alexey and volunteers with a program supporting families of children with disabilities and special needs. Even though his cerebral palsy and fatigue stops Alexey from playing most sport, he has found other pursuits.
Alexey swims with a local swimming club. He has started to participate in swim meets and dreams of being a Paralympian. He is working hard to achieve this dream, swimming 4 times a week and land training twice a week, to make his muscles work.
Alexey also has a collection of medical equipment. The most recent addition to his collection is a goniometer, an instrument used in physiotherapy to measure the bend of a joint. Despite the time Alexey spends in hospital, he adores playing doctors at home too!
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